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Global Genes Health Equity Program

Better Care, Better Management, Brighter Futures for Children Living with Sickle Cell Disease.

Period
2022-2023
Funded by
Global Genes
Implemented by
Tanzania Sicklecell Warriors Organization (TASIWA)
Countries
Tanzania
Where
Mwanza Region — Magu, Sengerema, Ilemela, and Nyamagana Districts
01

Overview

The project, Improving Survival Rates of Children Born with Sickle Cell Disease through Better Care and Management, was funded by Global Genes and implemented by the Tanzania Sicklecell Warriors Organization (TASIWA) in Mwanza, Tanzania. The project aimed to increase community awareness and understanding of Sickle Cell Disease (SCD), with a particular focus on improving knowledge of proper care, treatment, and management practices for children living with the condition. It recognized the importance of community education in addressing misconceptions, reducing stigma, and promoting informed approaches to sickle cell care.

Through awareness and educational initiatives, the project sought to empower parents, caregivers, and community members with practical knowledge about caring for children living with SCD, recognizing potential complications, and seeking timely medical attention. By promoting early intervention, appropriate healthcare-seeking behaviour, and stronger community support, TASIWA aimed to contribute to improved health outcomes and quality of life for children living with SCD and their families in Mwanza.

02

Our impact

The project, funded by Global Genes and implemented by TASIWA in Mwanza, Tanzania, contributed to strengthening community awareness and understanding of Sickle Cell Disease (SCD), particularly regarding the care and management of children living with the condition. By equipping parents, caregivers, and community members with essential knowledge, the initiative aimed to promote early recognition of complications, timely healthcare-seeking, reduced stigma, and improved support for affected families. Through these efforts, the project sought to contribute to better health outcomes, improved quality of life, and increased chances of survival for children living with SCD.

Where we work

Where TASIWA works Schematic map of the Lake Victoria region showing TASIWA project areas in Mwanza and Geita regions of Tanzania, with Kenya to the east. KENYA UGANDA TANZANIA Lake Victoria Mwanza Ilemela · Nyamagana SHIL Geita Three districts KETAN
Schematic map, not to scale.

Global Genes Health Equity Program — better Care, Better Management, Brighter Futures for Children Living with Sickle Cell Disease.

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